I was so weary of hearing comments like “I could never
do what you are doing” and “I don’t know how you’re doing it.” Each
comment like that, well-intentioned as it was, only seemed to shine a
fresh spotlight on how undesirable my life and our circumstances were.
It was like a compliment that highlighted the pain. I was also tired of
hearing “We’re worried about you” and “You can’t do this alone.”
If
there had been a transcript for my thoughts when I heard remarks like
that, it would have gone something like this: First of all, I’m not
“doing it,” whatever you think “it” is that I’m doing. I’m barely
coping. I’m getting through each day by fighting back tears and
meltdowns, and then at night I thrash around in bed wrestling anxiety
and fear and sadness and anger. But not sleep. Sleep is impossible, even
though I need sleep. Even though I’m more exhausted than I could have
ever imagined possible. So, please, don’t commend me.
Second,
you could do it. Because it’s not a choice. This stroke was foisted on
my family. It’s not like we chose it and then decided whether or not we
could deal with it. We have to deal with it because it’s our reality.
And if it was your reality, you would have to deal with it, too. I don’t
ever wish this on you, but if you had to do it, you would have to do
it, just like I have to do it. And OK, if you’re worried about me, then
pick up some groceries for me, or come over and hold my baby so I can
take a shower or a nap. I’m not doing this alone by choice; I don’t want
to be alone. I’m asking for all the help I can. I need help. So any
help you would like to offer would be appreciated. But don’t tell me
you’re worried, because then, being the pleaser that I am, I will worry
that you are worried. That shifts the burden onto me to now have to
somehow reassure you that I’ll be OK and that you can stop worrying. See
how that happens? And I don’t need that right now.
Fortunately,
I never said any of that aloud, at least not in that raw of a delivery,
but in some of my lower moments, that was how I felt.








