Too Short for a Blog Post, Too Long for a Tweet 175
Here are a couple of excerpts from a book I recently read, "Sick: A Memoir," by Porochista Khakpour:
When my mother admitted she saw me as sick, I cried for
hours. She thought she had done something wrong, but I let her know it
was the opposite. To be seen, to be heard, to exist wholly, whether in
beauty or ugliness, by a parent often felt like another big step to
wellness. I experienced it rarely, but when I did, I felt something
light in me that I had long thought had burnt out.
It
is no coincidence then that doctors and patients and the entire Lyme
community report—anecdotally, of course, as there is still a frustrating
scarcity of good data on anything Lyme-related—that women suffer the
most from Lyme. They tend to advance into chronic and late-stage forms
of the illness most because often it’s checked for last, as doctors
often treat them as psychiatric cases first. The nebulous symptoms plus
the fracturing of articulacy and cognitive fog can cause any Lyme
patient to simply appear mentally ill and mentally ill only. This is why
we hear that young women—again, anecdotally—are dying of Lyme the
fastest. This is also why we hear that chronic illness is a woman’s
burden. Women simply aren’t allowed to be physically sick until they are
mentally sick, too, and then it is by some miracle or accident that the
two can be separated for proper diagnosis. In the end, every Lyme
patient has some psychiatric diagnosis, too, if anything because of the
hell it takes getting to a diagnosis.
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